Wednesday, February 20, 2008

Oops, I Did It Again

I told you that I was going to post, but I didn't. So now, I really am. Truly. I'm going to post more. WAY more. I'm going to post every single day until March 1st.
So, now, I present to you, the first post in a series of ten...

...and nothing to say.

Well, there is something to say. I've been very sensitive and hurt-y lately. The last time I changed my wafer there was an open scar on my right side. It was, um, rather large. And wide. And deep. And sore. Remember when I had a deep, open scar on the left side? I don't know about you, but I most definitely do. It kept my wafer from staying on more than a couple hours. Now, this scar isn't making my wafer not stick as well, but it's really hurting me. I almost didn't go to school today because of it. But then again, I almost don't go to school for a lot of things.

WHOA. My 4-year-old cousin just farted about 12 million times and it stinks more than my ostomy when I don't put in Stop Drops.

I was going to write something, but I don't remember what it was. Oh yeah, now I do.

Here's good look at my osto-site, in a 3-D Vision Diagram.

This is the whole thing, adhesive stains and all.

This is my ostomy belt. It helps keep the bag on, so something like what happened a couple weeks ago doesn't happen again and I DON'T wind up with no bag :]

This is my clip. It keeps the bag from popping open.

This is my scar. See that little red thing? That's him. Reddy Whip.

I have more, but I'm running out of battery so I have to stop here. But I guess you'll hear more from me tomorrow.


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Sugarmouth O'Riordan said...

Casey--Are you still there? I just wanted to let you know what a bad-ass inspiration you are to me as a newbie ostomate. You are so tough and hardcore, it's really amazing. I wish I had half of your wit and grit!

I hope your lack of posting is due to your being too busy having a life offline (and not all preoccupied with your bag and whatnot).


Anonymous said...

i feel so sorry for you, i could never stay as strong as you during a time like that. good luck! (truly)

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Hi, um i've read your story and i have to start by saying you are a fantasic writer....and i have a ? that may be a tad stupid but i haven't read through your whole you have a temporary or permanent ileostomy? I had a temporary one and I was just wondering...

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Anonymous said...

Here I am at 71 getting a huge and much needed kick in the ass by a 13 year old. I had my ileostomy surgery due to CUC a week ago today and I'm home and feeling like I've been run over by a mack truck. But the bright note is that I KNOW there will be no more devastating Prednisone in my life (once I ween myself down from 20mg/day). This is all so New and so Serious and's nice to hear you can laugh at something Really awful (like using your pouch.) I'm coming off of a mix of muscle relaxants (from the awful hospital bed attack on my back) and pain pills for the long vertical cut in my abdominal wall so I'm hoping tomorrow will be easier.

My super wonderful husband JIM (who will love me pouch or not he says) and I have our 8th wedding anniversary tomorrow (yes on Valentine's day! :-) ) We've had two wicked days with my snapping and the poor guy picked up a skin bacteria infection on day one of my hospitalization and now he has to run to see a doctor every couple of days since hitting his shin on our car's trailer hitch. Figuring out all the timing on all kinds of meds was driving us both up the wall. Well things are better and my head is clearer and an uncle of mine who got his ileostomy thirty years ago promises me that I'll feel a lot better soon.

So just thanks for letting it all hang out pictures and all. I'll be back and pour over your wonderful site.

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Pullman, WA anonyomus ... I know I should read these things before posting .. but I was diagnosed with UC when I was 16 ... thank goodness despite flares (most 3-5 months) I've only had seriously awful (refractory UC) flares in the last five years. It was WAY past time for me to get rid of damn thing....never did me any good. Looking forward to so many healthier thing. Don't understand it but I think my skin is brighter /lighter since the surgery.

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Please accept my apologises if you or anybody feel offended. I did not meant to offend ANYONE with words "extra bag" (my dad has a great sense humour, dispite the disadvantage, and even likes to joke about it, i have gained a sense of humour after him so i think about it as of small, unpretentious, coy and unassuming and vulnerable stupid joke which is harmless to all of us)