So, now, I present to you, the first post in a series of ten...
...and nothing to say.
Well, there is something to say. I've been very sensitive and hurt-y lately. The last time I changed my wafer there was an open scar on my right side. It was, um, rather large. And wide. And deep. And sore. Remember when I had a deep, open scar on the left side? I don't know about you, but I most definitely do. It kept my wafer from staying on more than a couple hours. Now, this scar isn't making my wafer not stick as well, but it's really hurting me. I almost didn't go to school today because of it. But then again, I almost don't go to school for a lot of things.
WHOA. My 4-year-old cousin just farted about 12 million times and it stinks more than my ostomy when I don't put in Stop Drops.
I was going to write something, but I don't remember what it was. Oh yeah, now I do.
Here's good look at my osto-site, in a 3-D Vision Diagram.
This is the whole thing, adhesive stains and all.
This is my ostomy belt. It helps keep the bag on, so something like what happened a couple weeks ago doesn't happen again and I DON'T wind up with no bag :]
This is my clip. It keeps the bag from popping open.
This is my scar. See that little red thing? That's him. Reddy Whip.
I have more, but I'm running out of battery so I have to stop here. But I guess you'll hear more from me tomorrow.
54 comments:
Casey--Are you still there? I just wanted to let you know what a bad-ass inspiration you are to me as a newbie ostomate. You are so tough and hardcore, it's really amazing. I wish I had half of your wit and grit!
I hope your lack of posting is due to your being too busy having a life offline (and not all preoccupied with your bag and whatnot).
Best!!!
i feel so sorry for you, i could never stay as strong as you during a time like that. good luck! (truly)
Hi, um i've read your story and i have to start by saying you are a fantasic writer....and i have a ? that may be a tad stupid but i haven't read through your whole blog....do you have a temporary or permanent ileostomy? I had a temporary one and I was just wondering...
Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!
Thanks for sharing this link, but unfortunately it seems to be down... Does anybody have a mirror or another source? Please reply to my post if you do!
I would appreciate if a staff member here at ostomylife.blogspot.com could post it.
Thanks,
Jules
Thank you, that was extremely valuable and interesting...I will be back again to read more on this topic.
I love how you are using your ostomy so productively. Props. Keep up the blogging.
Here I am at 71 getting a huge and much needed kick in the ass by a 13 year old. I had my ileostomy surgery due to CUC a week ago today and I'm home and feeling like I've been run over by a mack truck. But the bright note is that I KNOW there will be no more devastating Prednisone in my life (once I ween myself down from 20mg/day). This is all so New and so Serious and shit...it's nice to hear you can laugh at something Really awful (like using your pouch.) I'm coming off of a mix of muscle relaxants (from the awful hospital bed attack on my back) and pain pills for the long vertical cut in my abdominal wall so I'm hoping tomorrow will be easier.
My super wonderful husband JIM (who will love me pouch or not he says) and I have our 8th wedding anniversary tomorrow (yes on Valentine's day! :-) ) We've had two wicked days with my snapping and the poor guy picked up a skin bacteria infection on day one of my hospitalization and now he has to run to see a doctor every couple of days since hitting his shin on our car's trailer hitch. Figuring out all the timing on all kinds of meds was driving us both up the wall. Well things are better and my head is clearer and an uncle of mine who got his ileostomy thirty years ago promises me that I'll feel a lot better soon.
So just thanks for letting it all hang out pictures and all. I'll be back and pour over your wonderful site.
hugs
Karen in Pullman, WA
Pullman, WA anonyomus ... I know I should read these things before posting .. but I was diagnosed with UC when I was 16 ... thank goodness despite flares (most 3-5 months) I've only had seriously awful (refractory UC) flares in the last five years. It was WAY past time for me to get rid of damn thing....never did me any good. Looking forward to so many healthier thing. Don't understand it but I think my skin is brighter /lighter since the surgery.
Time yield to the pain med.
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29/11/2013 My name is Greg and i have a question because i have a father in a similar situation. HI!!!!!!!!FIRSTLY BIG BRAVO AND HIGH FIVE 4 U for success of your operation!!! SECONDLY I REALLY NEED TO CONGRATULATE YOU AND THIRDLY I NEED TO SAY "do not take life seriously, because it will fail you at the end!!! TAKE FROM IT AS MUCH FUN AS IT IS POSSIBLE AND DO NOT REGRET ANYTHING YOU HAVE DONE TROUGH IT, we all are the same and do mistakes and we need to learn from those, after all we are only humans and humans gain knowledge only trough mistakes and correcting them along the way called life" What kind of drops do you mean? Does that stop the bad smell and where i can get it or how much does it cost? http://www.hightimes.com/read/pot-ibuprofen-medicinal-bliss I was wondering if you tried this and if it works? if this really works for people who have alzehimer and parkinson i have the answer i have been looking for a very long time!!!! ;P need to test it somehow ;P though it seems like in Poland it will be hard to do currently, but if i would like to mix, could you point me in a right direction? what would you suggest cookies? or should i smoke then eat the ibuprofen? which way is more effective and if i use other medicines (and have a ostomy done exactly the same "extra bag" ;P) WOULD IT BE OK TO TRY THIS KIND OF THERAPY?
P.S.
Please accept my apologises if you or anybody feel offended. I did not meant to offend ANYONE with words "extra bag" (my dad has a great sense humour, dispite the disadvantage, and even likes to joke about it, i have gained a sense of humour after him so i think about it as of small, unpretentious, coy and unassuming and vulnerable stupid joke which is harmless to all of us)
THANK YOU & I AM KEEPING MY FINGERS CROSSED FOR YOUR GOOD LUCK IN THE FUTURE, PLEASE REMEMBER JUST 2 THINGS: 1 IM WAITING FOR YOUR REPLY (OBVIOUSLY)AND 2 GL & HF AS MUCH AS U CAN ;P
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